So far we are making a go of it at home and havent yet had to think about hospice or hospital care. Kath is at a stage where she is really loosing muscle and fat. She sleeps a great deal, but when she is a awake, she is pretty foggy and weak. Occasionally, the feisty Kathleen we know and love pokes through. When her mum and sister and I were trying to understand her, we had to keep asking her to repeat what she said. Finally, in exasperation she ‘yelled’, “I have 3 deaf people looking after me!” We all laughed, even Kathleen a little. But those moments are fewer now as she slips away from us.
As she now has a hard time swallowing pills, its a little more difficult to control her back/hip pain. Also there is a lot of diarrhea to contend with. On the plus side, we found a massage therapist who works with lymphodema patients in the home. This has managed to reduce the swelling in her legs a decent amount in order to bring some relief.
Her sister Mel, is with us a few more days. She has been a great source of love and practical help for us all