Its been hard, but we are managing so far. I havent had much of an inspiration to write on the blog as things in many ways have not changed much. They are still headed to their inevitable conclusion and symptoms that now arise are just part of that. When that is, is hard to guess. Soon. Kathleen continues to get weaker and weaker. She hasnt eaten anything for some time. Even now, swallowing sips of water is difficult and speaking is very laboured for her.
To further complicate matters, Kath has been very frightened at night. They call it “sunsetting”… Things get worse at night. She will often wake up and not recognize the PSW and be afraid and confused. So with the help of our good friend Jan and her mum, we will be with her to keep her comfortable and feeling safe. I am on night shift tonight. Perhaps once or twice an hour, she will talk aloud about the dream state that she is in for a few sentences, look at me and then go back to a place where we are not. She is not really sleeping, but not really awake either. Somewhere between.