We have had many great visits over the last few days. Kathleen loves to see people, so dont be shy. She is upset with herself when she is sleeping, but I assure her people are not angry with her for resting. The pain is much better controlled as of yesterday. Anecdotal as well as empirical pump numbers show she is using a lot less of the heavy traditional pain meds and instead leaning on Tylonol and a special type of Advil that is much more gentle on her GI tract. She was able to sleep through the night without any pain crisis waking her. Its not completely gone but its for sure better. Hopefully we can titrate down the nasty stuff a bit so she is not so out of it and still be relatively comfortable.
Jacob, Evey, Jordan, Marlee and Leia. The kids sang “International Space Station” and brought some wonderful coloring over to cheer Kathleen up. They have been like a tiny greek chorus to remind us of what can be bright and beautiful about the future at many points along Kathleen’s cancer journey.